Future of Down's

Support Forum, Chat, and Information for parents of children with Down's Syndrome

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About MamaK

Mother, wife, general dogsbody, but I wouldn't have it any other way!! My three girls are the light of my life - Ava (Mar '08) is kind, clever and a joy to parent. She is destined to be on the stage (drama queen!!). Seren (Jun '10) is my beautiful little munchkin - officially diagnosed with Down's syndrome minutes after she was born, but we had an inidcation through a *high risk* Triple Test that she might have DS (we refused the amnio). Baby Violet was born in April 2012 and is learning to survive the bone crunchingly enthusiastic cuddles she gets from her older sisters... My wonderful husband Matt is a fantastic dad - our house is full of love and laughter!

Down’s Syndrome – Our Kids (part 1)

February 25, 2016 By MamaK

Down’s syndrome.  Sometimes we (as a community) wish we could alleviate the fear that some parents seem to have about the condition.  Life in 2016 isn’t like it was 20 years ago, but rather than write a long blog, the wonderful FoD community is going to let you have a look at our kids. If […]

Filed Under: Blog

Mainstream schooling for a child with Down’s syndrome

September 21, 2015 By MamaK

From the day I first thought about schools for Seren, I always knew I would allow her to lead the way.  Schooling and education are important to us as a family, and I knew I wanted to have Seren educated in a setting most suited to her needs.  As time went on it became more […]

Filed Under: Blog

“Anyone born with Down’s syndrome should be put down…”

September 16, 2015 By MamaK

Apparently its “cruel to let them lead a pointless life of a vegetable”  Those are the words of some woman who appeared on some sort of TV programme momentarily (or so I am told) and who now is seeking attention by being vile… Another Katie Hopkins in the making I guess.  The sad thing is, […]

Filed Under: Blog

Two down, one to go…

September 16, 2014 By MamaK

Ava goes in to Year 2, Seren (who has Down’s syndrome) goes in to Reception Class in the same school as Ava… Violet (aged 2) is still at pre-school. When summer term finished and the school holidays began, I got a little emotional. What a different set of emotions than from when Ava finished her […]

Filed Under: Blog

To Richard Dawkins…

August 25, 2014 By MamaK

I am coming in rather late on this one.  I was sitting in a casino in Las Vegas when my mobile phone started pinging furiously with messages, tags, texts and the like, alerting me to what you had said on twitter. My cheeks flushed, my blood boiled and yet the rant that I wanted to […]

Filed Under: Blog

Down’s syndrome is NOT a disability

August 17, 2014 By MamaK

That is according to my daughter Ava (aged 6). My middle daughter Seren (aged 4) has Down’s syndrome.  My youngest daughter Violet (aged 2) is typically chromosomed like Ava. Ava knows Seren has Down’s syndrome.  we talk about it in our house, openly and honestly.  From the outset (from the day Seren was born) we […]

Filed Under: Blog

How she has changed me…

July 14, 2014 By MamaK

I have referred to how Seren (who has Down’s syndrome) has “changed me” in several of my previous blogs.  I have never put my finger on how… and now, just over 4 years down the line it is becoming clearer to me.   RETARD That used to be a word I used a lot.  I […]

Filed Under: Blog

Myth Busting – Meet some “young mums”!

June 11, 2014 By MamaK

The vast majority of babies with Down’s syndrome are born to women under the age of 35.  The average age of women giving birth to a baby with Down’s syndrome is 28 in the UK.  Meet Beth, who fell pregnant at 17 and is now proud mum to Erin Mae. ————————- Hi all, I’m here […]

Filed Under: Blog

What they don’t tell you…

May 18, 2014 By MamaK

I hear all sorts of stories from the Down’s syndrome community that bother me in one way or another.  The medical professionals are usually the ones which get me the most annoyed – somehow I think they ought to know better. When anyone plans for a family, or finds themselves pregnant unexpectedly, we all want […]

Filed Under: Blog

Not a “Happy Anniversary”…

February 24, 2014 By MamaK

Seven years today… that’s how long I have been married. Every year since my wedding day I have celebrated this day.  No more.  One year ago today I last saw my mum alive.  I spoke to her and brought her water… I adjusted her covers on her bed, closed the window because she was chilled, […]

Filed Under: Blog

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Where To Turn

  • Future Of Down’s Facebook Group
  • The Down’s Syndrome Association
  • Cerebra
  • Down’s Syndrome Education International
  • The Down Syndrome Research Foundation UK
  • Down’s Syndrome Scotland
  • Down’s Heart Group
  • Home Start
  • Contact A Family
  • The Family Fund

And there are many more useful contacts and support resources on our pages.Down's Syndrome Association


 

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