First my disclaimer… I have never read a parenting book, I don’t subscribe to any one “style” of parenting… honestly, other than hippy vs. strict, I have no idea what styles there are.  Parenting (in my own personal opinion) should be what works best for each family and each child.  I would no sooner try [Read More...]

It has been SO LONG since I blogged, but there are reasons for that. Firstly, Violet had her operation (which I blogged my way through) in December and her recovery (and ours) lasted several weeks… completely through Christmas and in to the New Year. We had our first Christmas as a “family of 5″ and [Read More...]

I can’t believe our little boy is 18 months old! Time flies when you’re having fun! We have now moved to the Gold Coast, Queensland and so far have loved every minute. We decided to hire a car and drive from Sydney to the Gold Coast (about a 15 hour drive) and stop off at [Read More...]

We have had nothing but sunshine the last month and then today….RAIN!! But it’s not too bad – at least it’s still hot! So we have been here for one month now and been having a great time. We are still in holiday mode (as we felt we needed one) and have been busy doing [Read More...]

We arrived the morning on the 27th  Dec and so had a delayed Christmas with our Aussie family. Kyan was completely spoilt! He had so many presents that I think everyone got a little bored of watching him open them. It was great though as most of his toys are on the container so now [Read More...]

I apologise for not posting anything in awhile but we have been a little busy… We said our farewells to Laurens family and left Luton, UK on 24th December 2012. Our flights were for the 25th but we couldn’t leave Laurens family on Christmas Day! Although it was very sad saying goodbye to our family we [Read More...]

The moment your baby is diagnosed with Down’s syndrome, the universe injects you straight in to your heart with the most powerful drug known to man; let’s call it “Enhancenon”. In small quantities, this drug causes happiness, joy, euphoria, but an overdose of Enhancenon of this magnitude has some profound side effects on 98% of [Read More...]

I have some news… We are home! I can’t quite believe it.  It has a little to do with the desperate need for beds at GOSH and also to do with the fact that Violet is doing so well and I can now care for her myself at home. So the lactulose didn’t work… the [Read More...]

Guess what I woke up to?!! My baby girls bright beautiful smile – and almost completely puff free face.  What a fantastic start to the day. Violet had her last iv medication at 1am and now she will be given everything orally, and I will be doing it.  We are being prepared to go home. [Read More...]

Baby steps and turning little corners every hour – or that’s what it feels like. Pain relief sorted and Violet relaxed a lot.  She woke every 3 hours for feeding over night and has continued to feed every 3 hours all day.  This is because her usual 3 meals and 2 snacks have been replaced [Read More...]