To Richard Dawkins…

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I am coming in rather late on this one.  I was sitting in a casino in Las Vegas when my mobile phone started pinging furiously with messages, tags, texts and the like, alerting me to what you had said on twitter. My cheeks flushed, my blood boiled and yet the rant that I wanted to [Read More...]

Down’s syndrome is NOT a disability

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That is according to my daughter Ava (aged 6). My middle daughter Seren (aged 4) has Down’s syndrome.  My youngest daughter Violet (aged 2) is typically chromosomed like Ava. Ava knows Seren has Down’s syndrome.  we talk about it in our house, openly and honestly.  From the outset (from the day Seren was born) we [Read More...]

How she has changed me…

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I have referred to how Seren (who has Down’s syndrome) has “changed me” in several of my previous blogs.  I have never put my finger on how… and now, just over 4 years down the line it is becoming clearer to me.   RETARD That used to be a word I used a lot.  I [Read More...]

Myth Busting – Meet some “young mums”!

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The vast majority of babies with Down’s syndrome are born to women under the age of 35.  The average age of women giving birth to a baby with Down’s syndrome is 28 in the UK.  Meet Beth, who fell pregnant at 17 and is now proud mum to Erin Mae. ————————- Hi all, I’m here [Read More...]

What they don’t tell you…

She could hang on longer to this swing than her older sister aged 6!!

I hear all sorts of stories from the Down’s syndrome community that bother me in one way or another.  The medical professionals are usually the ones which get me the most annoyed – somehow I think they ought to know better. When anyone plans for a family, or finds themselves pregnant unexpectedly, we all want [Read More...]

Not a “Happy Anniversary”…

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Seven years today… that’s how long I have been married. Every year since my wedding day I have celebrated this day.  No more.  One year ago today I last saw my mum alive.  I spoke to her and brought her water… I adjusted her covers on her bed, closed the window because she was chilled, [Read More...]

To the man responsible for my mum’s death…

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Dear Paramedic (name withheld), On the 24th February 2014 it will be a whole year since I saw your face, and a whole year since I last saw my mum alive. I was married on the 24th February 2007, and the time I walked in to her bedroom last year to find her catastrophically ill, [Read More...]

“What’s it like to have a child with Down’s syndrome?”

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This is a question that has come to me by email, through the Future of Down’s contact form.  It’s a question I have been asked countless times in one way or another and I have always struggled to answer it – not because its a difficult question, but because if I were to ask the [Read More...]

My gorgeous Seren…

Beautiful Seren 3yrs old

I have been so proud of Seren over the last few months – having Down’s syndrome doesn’t stop her from doing anything, it just takes her a bit more practice and effort to achieve her goals.  Her determination is such an asset to her development and over the last months we have seen some amazing [Read More...]

The Day Kyan Met The Wiggles

Kyan and his favourite people - The Wiggles

On Saturday 19th October, we went along to Dreamworld with the plan to see The Wiggles live in concert. We were able to access a special show at 9:30am as we are passholders (unlimited access to the park all year round). We could not believe the crowds outside the park at 8:30am! And they kept [Read More...]