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Questions about Seren & Down’s syndrome

September 25, 2013 By MamaK

Seren is very much a part of our community… she is known and loved by many. For so many of my friends and their children she is simply Seren, a part of the woodwork and accepted.  But time will pass and kids will grow up… questions will arise, she will meet new friends, come across new families. Kids are inquisitive and that is great!

There is one rule I would appreciate everyone would stick to (and its the only one!) PLEASE let your kids ask questions. Let them ask me, as Seren’s mum, and don’t worry about the language they use or the questions they ask.

Children will ask questions which might make adults uncomfortable…

* what’s wrong with her?

* why does she look like that?

* why can’t she talk?

* why does she still wear nappies?

* why is she making that noise? (Seren repetitively hums and grunts)

* why does she wave her hands around

It’s ALL ok!! Let them ask! I would gladly answer all of those questions, and I am grateful to all the kids that ask.  As parents, please don’t be uncomfortable about it – encourage it. If you have questions, then please ask too! There is no such thing as a silly question and I am so totally open to answering anything.

My “vision” is that Seren becomes a valued member of our community; that she is simply Seren.  I hope that our community will look out for her, will love her.  In return, your children (and you adults) please ask me anything you want to know.  I am so proud of my girl, I will gladly explain anything about Down’s syndrome, and anything about Seren.

Filed Under: Blog

About MamaK

Mother, wife, general dogsbody, but I wouldn't have it any other way!! My three girls are the light of my life - Ava (Mar '08) is kind, clever and a joy to parent. She is destined to be on the stage (drama queen!!). Seren (Jun '10) is my beautiful little munchkin - officially diagnosed with Down's syndrome minutes after she was born, but we had an inidcation through a *high risk* Triple Test that she might have DS (we refused the amnio). Baby Violet was born in April 2012 and is learning to survive the bone crunchingly enthusiastic cuddles she gets from her older sisters... My wonderful husband Matt is a fantastic dad - our house is full of love and laughter!

Where To Turn

  • Future Of Down’s Facebook Group
  • The Down’s Syndrome Association
  • Cerebra
  • Down’s Syndrome Education International
  • The Down Syndrome Research Foundation UK
  • Down’s Syndrome Scotland
  • Down’s Heart Group
  • Home Start
  • Contact A Family
  • The Family Fund

And there are many more useful contacts and support resources on our pages.Down's Syndrome Association


 

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